Sunday, August 29, 2010

OOOHHHHH GEEEZZZ I HAVE THE ZZZZZZ'S

Well yesterday 8/28/10 I wet to a Mets vs. Astro's game.  I sprayed on my sunscreen, brought my water, and didnt wear a hat (slap on the wrist for that).  I was with my kids and 2 friends.  We took the train all the way to Citi Field in Queens (Im from the Bronx) Boy oh boy was that train ride hectic.  The NYC rushing around, the hustle and bustle of where to go, the kids repetitive song "Is this the stop? Is this the stop?" Geez Louis.  I was so happy when I finally sat down to see the game.  I took a picture with Mr. Met ( I am going to post a picture).  Then the dreaded words invaded my ear "Mommy I have to go to the bathroom" Arrrggghhhhhh!!!! I was so sore from walking around in the subway.  My new hip was saying "easy partner" and my decaying hip was saying "Are you nuts?" But my kids had to go to the Bathroom.  When the bathroom adventure ended it was a pretty good game.  The Astro's won (Boooooo, I am a yankees fan).  In the 8th inning the score was 4-2.  We decided to leave and I dreaded to ride back home.  I was exhausted and I hardly got up!!! The train ride was long but luckily I had supportive friends who knew I am slow when I walk and helped me with the kiddles.  I was too pooped to cook so I brought some KFC (Hey, I hate it but you have to love it) and I went to bed. 

Lupus causes tiredness,fatigue, lethergy, and absolute I don't feel like doing anything.  Some people call us Lupus Liver's" Lazy or say "why are you so slow? " What really hurts is whe my kids ask me why I am tired all the time.  I tell them "mommy's lupus makes her sleepy sometimes." Luckily the love's of my life understand that when mommy is tired shes getting ready to take a nap.  This tiredness may cause depression, feelings of hopelessness, you don't have energy to do chores, or your so tired you just don't feel like getting out the bed. 

Here's what I do when this cloud of fatigue showers on my life:
  • I stretch evrytime I get a chance
  • Before I get out the bed I say to myself "Kenya, there are things to do in this world.  The world needs you" (I'm not crazy, lmao, its pep talk)
  • I take my time.  Rushing may cause stress.
  • I don't eat a heavy meal.  I try to eat fruits or cereal in the morning and during the day and then I eat a heavy meal at night.  (Even though I don't usually do...ahem) 
  • Open my blinds and expose light.  Light will brighten your day. But don't stay out in the sun too long or wear your SUNBLOCK!!!
  • I inhale a deep breath and exhale slowly throughout the day.
  • The most important thing that kills my fatigue is positive thinking.  I wake up.  I don't think about all the streesing things that I have to do.  I keep and hour of Kenya time and reflecting on everything to be grateful for. 
This is my personal routine.  Everybody is different.  But keeping a positive mind is so imperative with this disease.  With all the things that happen to us Lupus liver's, this disease can easily bring us down.

I am thinking of taking Bikhram yoga!!!! Yippee....

If you know of any ways to fight fatigue please comment.  I would love to hear it!!!

For other sources you can go to LUPUS.ORG

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